Rare Disease Day is an observance held on the last day of February to raise awareness of rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. Liz Wheeler is the director of Coordination of Rare Diseases at Sanford (CoRDS). CoRDS and Sanford Children's Health Research Center is hosting the 4th Sanford Rare Disease Symposium Thursday and Friday at the Sanford Center in Sioux Falls. CoRDS is a registry that stores information on individuals affected by a rare disease to help accelerate research into rare diseases. The CoRDS registry also keeps individuals and their families aware of any opportunities to participate in research studies or clinical trials.
Rare Disease Day
